Rett Syndrome Research Trust

This study tests whether wearable biosensors can accurately measure symptoms like heart rate, breathing, sleep, and movement in people with Rett syndrome. About 30 participants will use FDA-cleared devices at home and during one overnight clinic visit. The goal is to validate the…

This study creates a worldwide online registry for caregivers of people with Rett syndrome. Caregivers can track symptoms, treatments, and milestones over time, and share this information with researchers. The goal is to better understand the condition and help design more effect…