Rett Syndrome Research Trust

This study is creating a worldwide registry to collect information from caregivers about living with Rett syndrome. It aims to better understand the disease, track symptoms and treatments over time, and help researchers design better future studies. The data is collected remotely…

This study is testing if special wearable sensors can reliably measure symptoms like heart rate, breathing, and sleep in people with Rett syndrome. About 30 participants will use the devices at home for several weeks and have one overnight clinic visit to compare results. The goa…