New registry aims to track Real-World effects of muscular dystrophy treatments
Knowledge-focused
Not yet recruiting
This study creates a registry (a database) for people with Duchenne or Becker muscular dystrophy, including symptomatic female carriers. The goal is to collect health information and quality-of-life data to monitor how new therapies work in everyday care. No treatment is given; p…
Sponsor: Dr. Andreas Ziegler • Aim: Knowledge-focused
Last updated May 06, 2026 16:03 UTC