X-LINKED RETINITIS PIGMENTOSA
Clinical trials for X-LINKED RETINITIS PIGMENTOSA explained in plain language.
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Gene Therapy's lasting effects on vision tracked in Long-Term study
Disease control CompletedThis study follows people with two inherited eye conditions—choroideremia and X-linked retinitis pigmentosa—who previously received gene therapy. Researchers monitor their safety and vision over several years to see if the treatment remains safe and helps preserve sight. Particip…
Matched conditions: X-LINKED RETINITIS PIGMENTOSA
Phase: PHASE3 • Sponsor: NightstaRx Ltd, a Biogen Company • Aim: Disease control
Last updated Jul 08, 2026 00:00 UTC
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Gene therapy offers hope for rare blindness
Disease control CompletedThis Phase 3 trial tests a gene therapy called botaretigene sparoparvovec for X-linked retinitis pigmentosa, a genetic condition that causes progressive vision loss. The study involves 105 participants who receive the therapy via injection under the retina. The main goal is to se…
Matched conditions: X-LINKED RETINITIS PIGMENTOSA
Phase: PHASE3 • Sponsor: Janssen Research & Development, LLC • Aim: Disease control
Last updated Jun 27, 2026 11:02 UTC
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Gene therapy watch: 5-Year safety check for inherited blindness treatment
Disease control CompletedThis study followed 42 people who received a gene therapy for X-linked retinitis pigmentosa, an inherited eye disease that causes blindness. The goal was to check the treatment's safety over up to 5 years. Researchers also looked at whether patients' vision and ability to move ar…
Matched conditions: X-LINKED RETINITIS PIGMENTOSA
Sponsor: Janssen Research & Development, LLC • Aim: Disease control
Last updated Jun 27, 2026 08:12 UTC
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New registry tracks vision loss in rare eye diseases
Knowledge-focused CompletedThis study collects information from about 889 people with inherited retinal diseases (IRDs) to understand how vision changes over time. Participants have their eyesight and visual field tested regularly. The goal is to learn more about the natural course of these rare eye condit…
Matched conditions: X-LINKED RETINITIS PIGMENTOSA
Sponsor: Janssen Research & Development, LLC • Aim: Knowledge-focused
Last updated Aug 13, 2026 00:00 UTC