X-LINKED HYPOPHOSPHATEMIA
Clinical trials for X-LINKED HYPOPHOSPHATEMIA explained in plain language.
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XLH patients monitored for years in major observational study
Knowledge-focused OngoingThis observational study follows 782 people with X-linked hypophosphatemia (XLH), a rare genetic bone disease, to understand how the condition changes over time. It also checks the long-term safety and effectiveness of the drug burosumab. Participants receive no new treatment—jus…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Ultragenyx Pharmaceutical Inc • Aim: Knowledge-focused
Last updated May 14, 2026 12:03 UTC
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10-Year XLH study aims to uncover hidden disease toll
Knowledge-focused OngoingThis study follows 226 people with X-linked hypophosphatemia (XLH) for up to 10 years. Researchers will collect information on height, walking ability, fractures, and daily life challenges to better understand how the disease changes over time and affects patients physically and …
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Kyowa Kirin Co., Ltd. • Aim: Knowledge-focused
Last updated May 12, 2026 13:43 UTC