X-LINKED HYPOPHOSPHATEMIA
Clinical trials for X-LINKED HYPOPHOSPHATEMIA explained in plain language.
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New approach tested for rare Bone-Weakening disorder
Disease control OngoingThis study is testing whether calcitriol (a form of vitamin D) given alone for one year can help people with X-linked hypophosphatemia (XLH), a rare genetic disorder that causes weak bones and poor growth. The research involves 20 children and adults with XLH and will measure cha…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Phase: EARLY_PHASE1 • Sponsor: Massachusetts General Hospital • Aim: Disease control
Last updated Mar 30, 2026 14:28 UTC
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Decade-Long watch: tracking a rare Bone-Weakening disease
Knowledge-focused OngoingThis study aims to observe 226 patients with X-linked hypophosphatemia (XLH), a rare genetic bone disorder, for up to 10 years. Researchers will track the disease's natural progression, the physical and emotional burden on patients, and the long-term effects of treatments. The go…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Kyowa Kirin Co., Ltd. • Aim: Knowledge-focused
Last updated Mar 31, 2026 12:12 UTC
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Global effort tracks rare bone disease over time
Knowledge-focused OngoingThis study follows people with X-linked hypophosphatemia (XLH), a rare genetic bone disorder, to better understand how the disease progresses over time. Researchers are tracking 782 patients who are either receiving burosumab treatment or not receiving treatment to monitor long-t…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Ultragenyx Pharmaceutical Inc • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:40 UTC