VHL - VON HIPPEL-LINDAU SYNDROME
Clinical trials for VHL - VON HIPPEL-LINDAU SYNDROME explained in plain language.
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New pill shows promise for rare kidney cancer in VHL patients
Disease control OngoingThis phase 2 trial is testing a daily pill called belzutifan in 50 people with VHL disease who have kidney cancer. The goal is to see if the drug can shrink tumors. Researchers are also monitoring how long any tumor shrinkage lasts and checking for side effects.
Matched conditions: VHL - VON HIPPEL-LINDAU SYNDROME
Phase: PHASE2 • Sponsor: Peloton Therapeutics, Inc., a subsidiary of Merck & Co., Inc. (Rahway, New Jersey USA) • Aim: Disease control
Last updated Jun 27, 2026 12:07 UTC
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VHL patients share their struggles in new quality-of-life survey
Knowledge-focused OngoingThis study asks 200 adults with von Hippel-Lindau syndrome to fill out an anonymous online questionnaire about their quality of life, psychological well-being, and difficulties accessing care. No treatment or medical tests are involved — the goal is simply to learn what patients …
Matched conditions: VHL - VON HIPPEL-LINDAU SYNDROME
Sponsor: IRCCS Ospedale San Raffaele • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:32 UTC