SICKLE CELL

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Trials to join now! 2 Not yet recruiting 1 Completed 1

Family secrets? study maps how relatives talk about genetic health risks

Knowledge-focused Completed

This study explored how family members share health information about genetic diseases like sickle cell, diabetes, and cancer. Over 1,000 adults completed surveys or interviews about their family health history and support. The goal was to understand social and relational factors…

Matched conditions: SICKLE CELL

Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused

Last updated Jun 27, 2026 13:05 UTC

SICKLE CELL

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Family secrets? study maps how relatives talk about genetic health risks