NOONAN SYNDROME
Clinical trials for NOONAN SYNDROME explained in plain language.
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Weekly shot may help short kids grow taller
Disease control OngoingThis study tests if a new growth hormone medicine called somapacitan is safe and works for children who are short because they were born small, or have Turner syndrome, Noonan syndrome, or unknown reasons. About 47 children will receive a weekly injection at home for around 3 yea…
Matched conditions: NOONAN SYNDROME
Phase: PHASE3 • Sponsor: Novo Nordisk A/S • Aim: Disease control
Last updated May 17, 2026 04:17 UTC
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New study aims to support families of children with rare diseases
Knowledge-focused ENROLLING_BY_INVITATIONThis study looks at the unmet palliative care needs of children with rare diseases and their family caregivers. Researchers will test a program called FACE-Rare to see if it helps families prepare for medical decisions and improves quality of life. About 480 families will take pa…
Matched conditions: NOONAN SYNDROME
Phase: NA • Sponsor: Children's National Research Institute • Aim: Knowledge-focused
Last updated May 17, 2026 04:13 UTC
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New registry tracks growth hormone use in kids with noonan syndrome
Knowledge-focused ENROLLING_BY_INVITATIONThis study is a registry that will follow up to 221 children with Noonan Syndrome who are already taking or starting Norditropin® for short stature. Researchers will collect information on growth, side effects, and quality of life over time. The goal is to better understand the l…
Matched conditions: NOONAN SYNDROME
Sponsor: Novo Nordisk A/S • Aim: Knowledge-focused
Last updated May 12, 2026 13:42 UTC