New registry monitors noonan syndrome kids on growth hormone
NCT ID NCT05308927
First seen Nov 01, 2025 · Last updated Jun 05, 2026 · Updated 30 times
Summary
This study is a registry that follows children with Noonan Syndrome who are already taking or starting Norditropin® for short stature. It aims to collect long-term data on growth, safety, and quality of life. No new treatment is given; it simply observes real-world outcomes. About 221 children will be enrolled from French clinics.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Ap-Hp-Hopital de Bicetre-2
Le Kremlin-Bicêtre, 94275, France
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Centre Hospitalier Universitaire D'Angers-2
Angers, 49033, France
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Hopital Des Enfants-2
Toulouse, 31059, France
Conditions
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