LEGIUS SYNDROME
Clinical trials for LEGIUS SYNDROME explained in plain language.
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New study tests Stress-Busting therapy for parents of kids with rare genetic conditions
Symptom relief Recruiting nowThis study looks at whether Acceptance and Commitment Therapy (ACT) can help reduce stress for caregivers of children with a RASopathy (a group of genetic conditions). About 70 adult caregivers will take part fully online, using a phone app to watch videos and answer surveys. Hal…
Matched conditions: LEGIUS SYNDROME
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Symptom relief
Last updated May 06, 2026 16:03 UTC
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Scientists launch major study to unravel rare genetic disorders
Knowledge-focused Recruiting nowThis study aims to better understand RASopathies, a group of genetic conditions that can cause developmental issues, birth defects, and increased cancer risk. Researchers will follow up to 500 people of any age who have or may have a RASopathy, along with their family members, co…
Matched conditions: LEGIUS SYNDROME
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated May 15, 2026 11:55 UTC
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Major study launches to unlock secrets of rare genetic disorders
Knowledge-focused Recruiting nowThis study aims to learn more about a group of genetic conditions called RASopathies, which affect development and can cause heart defects, learning problems, and cancer risk. Researchers will collect blood, tissue, and medical information from up to 1,000 participants, including…
Matched conditions: LEGIUS SYNDROME
Sponsor: Children's Hospital Medical Center, Cincinnati • Aim: Knowledge-focused
Last updated May 11, 2026 20:53 UTC