LEGIUS SYNDROME
Clinical trials for LEGIUS SYNDROME explained in plain language.
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New study tests online therapy to ease stress for parents of kids with rare genetic conditions
Symptom relief Recruiting nowThis study tests whether Acceptance and Commitment Therapy (ACT) can help caregivers of children with RASopathies—a group of genetic conditions—manage parenting stress. About 70 adult caregivers will participate fully online, watching weekly videos and having coaching sessions ov…
Matched conditions: LEGIUS SYNDROME
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Symptom relief
Last updated Jun 17, 2026 03:13 UTC
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Scientists launch major study to unravel rare genetic conditions
Knowledge-focused Recruiting nowThis study aims to learn more about RASopathies, a group of genetic conditions that can cause developmental issues, birth defects, and increased cancer risk. Researchers will follow up to 500 people of any age who have or may have a RASopathy, along with their family members, for…
Matched conditions: LEGIUS SYNDROME
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Jun 11, 2026 12:10 UTC
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Massive study aims to unlock secrets of rare genetic disorders
Knowledge-focused Recruiting nowThis study is collecting blood, tissue, and medical information from up to 1,000 people with RASopathies—a group of genetic conditions that affect development and raise cancer risk. Researchers will store samples and data in a database to help scientists worldwide learn more abou…
Matched conditions: LEGIUS SYNDROME
Sponsor: Children's Hospital Medical Center, Cincinnati • Aim: Knowledge-focused
Last updated Jun 01, 2026 17:57 UTC