HYPOPHOSPHATASIA
Clinical trials for HYPOPHOSPHATASIA explained in plain language.
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Russian HPP study tracks disease without treatment
Knowledge-focused Recruiting nowThis study aims to understand how hypophosphatasia (HPP) naturally progresses over time in children and adults in Russia. Researchers will collect detailed information from 55 participants, including medical history, symptoms, lab tests, and quality of life measures. No new treat…
Matched conditions: HYPOPHOSPHATASIA
Sponsor: AstraZeneca • Aim: Knowledge-focused
Last updated May 17, 2026 12:46 UTC
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Could your body fight off this rare disease drug?
Knowledge-focused Recruiting nowThis study follows 30 people with hypophosphatasia (HPP) who are taking or starting asfotase alfa. Researchers want to see if the body's immune system can make the drug less effective or cause serious allergic reactions. Participants will be monitored for at least 5 years.
Matched conditions: HYPOPHOSPHATASIA
Sponsor: Alexion Pharmaceuticals, Inc. • Aim: Knowledge-focused
Last updated May 12, 2026 13:39 UTC
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Rare bone disease under the microscope: new study tracks patients for better treatments
Knowledge-focused Recruiting nowThis study follows up to 200 adults and children with hypophosphatasia, a rare genetic disorder that weakens bones and teeth. Researchers will collect medical history, treatment details, and quality-of-life information to better understand how the disease progresses over time. No…
Matched conditions: HYPOPHOSPHATASIA
Sponsor: Duke University • Aim: Knowledge-focused
Last updated May 11, 2026 20:38 UTC
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New registry aims to speed up diagnosis of rare bone disease
Knowledge-focused Recruiting nowThis study follows 130 adults with hypophosphatasia, a rare bone disease, to track how they are diagnosed and what medical events occur. Researchers want to find ways to reduce the long delay between first symptoms and diagnosis. Participants are not given any treatment; the stud…
Matched conditions: HYPOPHOSPHATASIA
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 07, 2026 18:39 UTC