GENETIC SYNDROME
Clinical trials for GENETIC SYNDROME explained in plain language.
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Parent training may ease mental health struggles in kids with rare genetic disorders
Symptom relief CompletedThis study tested a 22-week online parenting program (Incredible Years) for families of children aged 3-7 with genetic abnormalities and mental health or developmental problems. 53 families were randomly assigned to the program or usual care. The goal was to see if parents would …
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: Fundació Sant Joan de Déu • Aim: Symptom relief
Last updated Jun 27, 2026 08:03 UTC
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New study maps developmental milestones in babies with rare genetic conditions
Knowledge-focused CompletedThis study followed 43 infants with rare genetic disorders to track their development from birth up to age 3, with medical records reviewed until age 18. Researchers used a standard developmental assessment tool to understand each child's unique needs. The goal was to gather info…
Matched conditions: GENETIC SYNDROME
Sponsor: Boston Children's Hospital • Aim: Knowledge-focused
Last updated Jun 27, 2026 13:02 UTC
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New tool aims to help pregnant women navigate genetic testing decisions
Knowledge-focused CompletedThis study tested a shared decision-making tool called NEST to help pregnant women understand and choose noninvasive prenatal testing (NIPT). Over 600 pregnant women participated, comparing those who used the tool with those who received usual care. The goal was to see if the too…
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: The Cleveland Clinic • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:09 UTC