GENETIC SYNDROME
Clinical trials for GENETIC SYNDROME explained in plain language.
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Parenting program shows promise for kids with genetic disorders
Symptom relief CompletedThis study tested an online parenting program for families of children aged 3 to 7 with genetic conditions and mental health or language problems. 53 families were randomly assigned to either the program or usual care. The program involved 22 weekly group sessions. Researchers me…
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: Fundació Sant Joan de Déu • Aim: Symptom relief
Last updated Jun 12, 2026 12:04 UTC
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New study maps developmental milestones in babies with rare genetic conditions
Knowledge-focused CompletedThis study followed 43 infants with rare genetic disorders to track their development from birth up to age 3, with medical records reviewed until age 18. Researchers used a standard developmental assessment tool to understand each child's unique needs. The goal was to gather info…
Matched conditions: GENETIC SYNDROME
Sponsor: Boston Children's Hospital • Aim: Knowledge-focused
Last updated Jun 17, 2026 01:41 UTC
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Prenatal test talk under the microscope: can we make choices clearer?
Knowledge-focused CompletedThis study looked at how doctors discuss noninvasive prenatal testing (NIPT) with pregnant women during their first visit. NIPT is a blood test that checks for certain genetic conditions like Down syndrome. The goal was to learn how to help women make better-informed decisions ab…
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: The Cleveland Clinic • Aim: Knowledge-focused
Last updated Jun 08, 2026 13:09 UTC