ALAGILLE SYNDROME (ALGS)
Clinical trials for ALAGILLE SYNDROME (ALGS) explained in plain language.
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New national registry aims to unlock secrets of rare childhood liver diseases
Knowledge-focused Recruiting nowThis study creates a Canadian registry for children under 18 with Alagille syndrome or genetic intrahepatic cholestasis, rare liver conditions that cause bile buildup. Researchers will collect health data from medical records over time to understand how these diseases progress an…
Matched conditions: ALAGILLE SYNDROME (ALGS)
Sponsor: Children's Hospital of Eastern Ontario • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:28 UTC
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New safety study monitors liver risks in kids taking livmarli
Knowledge-focused Recruiting nowThis study is monitoring 50 children in Japan with Alagille syndrome (ALGS) or progressive familial intrahepatic cholestasis (PFIC) who are taking the drug Livmarli (maralixibat). Researchers are using a national registry to track how many children develop liver problems and how …
Matched conditions: ALAGILLE SYNDROME (ALGS)
Sponsor: Takeda • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:07 UTC