Cure My Disease

Don't miss your cure!

Log in / Sign up

Leukoencephalopathy, porphyria-related

MONDO:0958226

1 clinical trial for this condition and its sub-types.

Follow this condition — get notified about new trials

Broader categories

Disease (680) Liver disorder (307) Metabolic disease (233) Nervous system disorder (231) Hereditary disease (176) Neurodegenerative disease (171) Digestive system disorder (160) Skin disorder (132) Central nervous system disorder (107) Endocrine system disorder (72)

Trials to join now! 1

Scientists launch Largest-Ever porphyria watch: 1,500 patients tracked for clues

Knowledge-focused Recruiting now

This study follows 1,500 people with porphyria over many years to learn how the disease progresses, what symptoms appear, and how it affects pregnancy and lifespan. Researchers will collect medical records and lab results to create a clearer picture of the condition. No new treat…

Sponsor: The American Porphyrias Expert Collaborative • Aim: Knowledge-focused

Last updated Jun 27, 2026 12:33 UTC