New study tests workplace coaching to keep Parkinson's patients on the job

NCT ID NCT06573866

Symptom relief Sponsor: Radboud University Medical Center Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Aug 14, 2026 · Updated 3 times

Summary

This study tests a personalized workplace intervention for 124 Dutch workers with Parkinson's disease, cerebellar ataxia, hereditary spastic paraparesis, or slowly progressive neuromuscular/mitochondrial disorders. A trained facilitator helps employees and their managers identify work obstacles and find practical solutions. The goal is to reduce fatigue after work and improve job retention over 18 months.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance: Preventive Participatory Workplace Intervention (PPWI) – a structured process where a facilitator helps employees and managers identify and solve work-related obstacles.
What this could lead to: If successful, this could provide a practical, low-cost way to help people with progressive movement disorders keep working longer and improve their quality of life.
What could go wrong: This is a relatively small, single-country trial testing a behavioral intervention, so results may not apply broadly. The intervention depends on employer cooperation, which may vary.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

124 people

The number who actually took part.

Started

Oct 2024

Expected to finish

Mar 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 to 65 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * having a diagnosis Parkinson Disease, cerebellar ataxia, hereditairy spastic paraparesis, or a slowly progressive neuromuscular or mitochondrial disorder, confirmed by the treating physician (e.g. neurologist, rehabilitation physician) * aged 18-65 years; * being employed for at least 8 hours per week (at baseline). This also includes individuals who have reduced their working hours until reaching this threshold of 8 hours per week. Working time may be distributed across multiple working days; * having the intention to continue to work during the study period of 18 months, to prevent inclusion of participants who plan to retire within the 18-month RCT period; * being open to talk to the employer or manager about any changes or limitations in work performance (disclosing the diagnosis is not required, by law). Exclusion Criteria: * individuals who are at the beginning of a sick leave procedure (under the Gatekeeper Improvement Act; Wvp); * being fully self-employed. Partial self-employment in addition to paid employment is allowed, on the condition that the paid employment accounts for more than half of the total weekly working hours; * having a second employer for over eight hours per week; * proficiency in the Dutch language is not sufficient; * severe comorbidity or health-related event that will hamper compliance to the protocol, e.g. in case of a severe cognitive impairment, a relatively abrupt transition to a very progressive manifestation of the disease, a planned surgery.

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Conditions

The condition(s) this trial relates to.

cerebellar ataxia hereditary spastic paraplegia inborn mitochondrial metabolism disorder mitochondrial disease neurodegenerative disease neuromuscular disease Parkinson disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cerebellar ataxia Hereditary spastic paraparesis Mitochondrial diseases Neuromuscular diseases (NMD) Parkinson disease

New study tests workplace coaching to keep Parkinson's patients on the job

What the study statuses mean