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Hidden struggles: new study maps Wilson's disease care gaps in upper egypt

NCT ID NCT07241832

First seen Nov 21, 2025 · Last updated May 23, 2026 · Updated 24 times

Summary

This study looks at the real-life challenges faced by people with Wilson's disease in Upper Egypt, a rare condition where copper builds up in the body. Researchers will survey 66 patients to understand dietary habits, emotional and social burdens, and barriers to getting care. The goal is to identify gaps and suggest better ways to support patients and families in low-resource settings.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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