Researchers seek wilson disease patients to shape future gene editing trials
NCT ID NCT07226622
First seen Nov 11, 2025 · Last updated May 24, 2026 · Updated 16 times
Summary
This study aims to better understand how people with Wilson disease manage their condition and what influences their decision to join clinical research. About 30 adults with confirmed Wilson disease will complete surveys about their symptoms, treatments, diet, and interest in a future gene editing study. No experimental treatment is given; the goal is to gather information to design better future trials.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Locations
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American Research Corporation
San Antonio, Texas, 78215, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Northwestern University
Chicago, Illinois, 60611, United States
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University of California Davis Health
Sacramento, California, 95817, United States
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University of California Los Angeles Medical Center
Los Angeles, California, 90027, United States
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University of Michigan Medicine
Ann Arbor, Michigan, 48109, United States
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Yale New Haven Hospital
New Haven, Connecticut, 06520, United States
Conditions
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