New study tracks Real-World health of children with dwarfism
NCT ID NCT06168201
First seen Jan 09, 2026 · Last updated May 23, 2026 · Updated 20 times
Summary
This study follows about 170 people with achondroplasia (a common form of dwarfism) in the United States for up to 5 years. Researchers will collect health records and questionnaires to understand growth, medical issues, and quality of life—both in those taking the drug VOXZOGO and those not. The goal is to gather real-world information, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Baylor College of Medicine
RECRUITINGHouston, Texas, 77030-2316, United States
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PicnicHealth
RECRUITINGSan Francisco, California, 94107, United States
Contact Email: •••••@•••••
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Piedmont Health
RECRUITINGStatesville, North Carolina, 28625, United States
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Sanford Health
RECRUITINGSioux Falls, South Dakota, 57105, United States
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UCSF
RECRUITINGOakland, California, 94609, United States
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University of Cincinnati
RECRUITINGCincinnati, Ohio, 45229, United States
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University of Wisconsin
RECRUITINGMadison, Wisconsin, 53726, United States
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Conditions
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