New registry hopes to unlock secrets of Ultra-Rare childhood cancers
NCT ID NCT07489378
First seen Apr 04, 2026 · Last updated May 23, 2026 · Updated 9 times
Summary
This study is creating a registry of very rare solid tumors in people aged 1 month to 39 years. Researchers will collect medical records, tumor samples, and survey answers from participants over 5 years. The goal is to gather enough information to better understand these rare cancers and pave the way for future treatments. No clinic visits are needed; participation is remote.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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