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Eye disease study aims to pave way for future treatments

NCT ID NCT03146078

First seen Feb 04, 2026 · Last updated Jun 18, 2026 · Updated 19 times

Summary

This study follows 127 people with a genetic eye condition called USH2A-related retinal degeneration, which can cause vision loss and hearing problems. Researchers measure changes in vision, retinal sensitivity, and mobility over several years. The goal is to understand how the disease progresses so that future treatments can be tested more effectively. No new drugs or treatments are given in this study.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Baylor Eye Physicians and Surgeons

    Houston, Texas, 77030, United States

  • Centre hospitalier National d'Ophtalmologie des Quinze-Vingts

    Paris, 75012, France

  • Hospital for Sick Children

    Toronto, Canada

  • Kellogg Eye Center, University of Michigan

    Ann Arbor, Michigan, 48105, United States

  • Massachusetts Eye and Ear

    Boston, Massachusetts, 02114, United States

  • Moorfields Eye Hospital

    London, United Kingdom

  • Moran Eye Center, University of Utah

    Salt Lake City, Utah, 84107, United States

  • OHSU Casey Eye Institute

    Portland, Oregon, 97239, United States

  • Radboud University

    Nijmegen, Netherlands

  • Retina Foundation of the Southwest

    Dallas, Texas, 75231, United States

  • University of California, San Francisco

    San Francisco, California, 94143-0344, United States

  • University of Tubingen

    Tübingen, Germany

  • Vitreo-Retinal Associates

    Gainesville, Florida, 32607, United States

  • Wilmer Eye Institute at Johns Hopkins

    Baltimore, Maryland, 21287-9277, United States

Conditions

The condition(s) this trial relates to.

retinitis pigmentosa 39 Usher syndrome type 2A

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.