Long-term study maps vision decline in rare genetic eye disease
NCT ID NCT03146078
First seen Feb 04, 2026 · Last updated May 01, 2026 · Updated 10 times
Summary
This study follows 127 people with USH2A-related retinal degeneration to see how their vision changes over several years. Participants have either Usher syndrome type 2a (with hearing loss) or non-syndromic retinitis pigmentosa. No treatment is given; the goal is to collect data that can help design future clinical trials.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylor Eye Physicians and Surgeons
Houston, Texas, 77030, United States
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Centre hospitalier National d'Ophtalmologie des Quinze-Vingts
Paris, 75012, France
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Hospital for Sick Children
Toronto, Canada
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Kellogg Eye Center, University of Michigan
Ann Arbor, Michigan, 48105, United States
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Massachusetts Eye and Ear
Boston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
London, United Kingdom
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Moran Eye Center, University of Utah
Salt Lake City, Utah, 84107, United States
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OHSU Casey Eye Institute
Portland, Oregon, 97239, United States
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Radboud University
Nijmegen, Netherlands
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Retina Foundation of the Southwest
Dallas, Texas, 75231, United States
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University of California, San Francisco
San Francisco, California, 94143-0344, United States
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University of Tubingen
Tübingen, Germany
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Vitreo-Retinal Associates
Gainesville, Florida, 32607, United States
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Wilmer Eye Institute at Johns Hopkins
Baltimore, Maryland, 21287-9277, United States
Conditions
Explore the condition pages connected to this study.