Eye disease study tracks slow decline to prepare for future treatments
NCT ID NCT03146078
First seen Feb 04, 2026 · Last updated Jun 10, 2026 · Updated 18 times
Summary
This study follows 127 people with a genetic eye condition called USH2A-related retinal degeneration, which can cause vision loss and hearing problems. Researchers measure changes in vision, retinal structure, and mobility over several years to better understand how the disease progresses. No treatment is given; the goal is to gather data that will help design future clinical trials for potential therapies.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylor Eye Physicians and Surgeons
Houston, Texas, 77030, United States
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Centre hospitalier National d'Ophtalmologie des Quinze-Vingts
Paris, 75012, France
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Hospital for Sick Children
Toronto, Canada
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Kellogg Eye Center, University of Michigan
Ann Arbor, Michigan, 48105, United States
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Massachusetts Eye and Ear
Boston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
London, United Kingdom
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Moran Eye Center, University of Utah
Salt Lake City, Utah, 84107, United States
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OHSU Casey Eye Institute
Portland, Oregon, 97239, United States
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Radboud University
Nijmegen, Netherlands
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Retina Foundation of the Southwest
Dallas, Texas, 75231, United States
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University of California, San Francisco
San Francisco, California, 94143-0344, United States
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University of Tubingen
Tübingen, Germany
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Vitreo-Retinal Associates
Gainesville, Florida, 32607, United States
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Wilmer Eye Institute at Johns Hopkins
Baltimore, Maryland, 21287-9277, United States
Conditions
Explore the condition pages connected to this study.