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Researchers track rare hormone disorder in 133 patients

NCT ID NCT00668291

First seen Nov 20, 2025 · Last updated Jun 08, 2026 · Updated 30 times

Summary

This study followed 133 people with PPNAD (a rare adrenal gland disorder) or Carney Complex (a related genetic condition) for three years. The goal was to better understand the symptoms and genetic causes of these diseases, not to test a new treatment. Participants had yearly check-ups including clinical exams, genetic testing, and imaging.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Hôpital Cochin

    Paris, 75679, France

Conditions

The condition(s) this trial relates to.

Carney complex pigmented nodular adrenocortical disease, primary, 1

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.