Pain relief ignored: study probes why kids with butterfly skin avoid opioids
NCT ID NCT04853667
First seen Nov 01, 2025 · Last updated Apr 29, 2026 · Updated 23 times
Summary
This study looked at why children with a rare, painful skin condition called epidermolysis bullosa often do not take their prescribed opioid pain medicine before baths and bandage changes. Researchers interviewed 10 children and their parents to understand the barriers. The goal was to gather insights to improve pain management, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
Conditions
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