Rare bone disease patients tracked in Long-Term safety study
NCT ID NCT04783428
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 24 times
Summary
This study follows 23 people with tumor-induced osteomalacia (TIO), a rare condition where tumors cause weak bones. Researchers are checking how well the drug burosumab works over time and watching for side effects. Participants continue their normal treatment while the study collects health data.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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IDIM - Instituto de Diagnóstico e Investigaciones Metabólicas
Buenos Aires, Argentina
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Indiana University
Bloomington, Indiana, 47405, United States
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Johns Hopkins University
Baltimore, Maryland, 21218, United States
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University of Virginia
Charlottesville, Virginia, 22908, United States
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Vanderbilt University Medical Center
Nashville, Tennessee, 37235, United States
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Yale University
New Haven, Connecticut, 06520, United States
Conditions
Explore the condition pages connected to this study.