Rare bone disease patients tracked in Long-Term drug safety study
NCT ID NCT04783428
First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 22 times
Summary
This study follows 23 people with tumor-induced osteomalacia (TIO), a rare condition that causes weak bones due to tumors. Researchers are checking the long-term safety and effectiveness of the drug burosumab, which helps control phosphate levels. Participants continue their prescribed treatment while doctors monitor their health, tumor changes, and quality of life over time.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for TUMOR-INDUCED OSTEOMALACIA (TIO) are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
IDIM - Instituto de Diagnóstico e Investigaciones Metabólicas
Buenos Aires, Argentina
-
Indiana University
Bloomington, Indiana, 47405, United States
-
Johns Hopkins University
Baltimore, Maryland, 21218, United States
-
University of Virginia
Charlottesville, Virginia, 22908, United States
-
Vanderbilt University Medical Center
Nashville, Tennessee, 37235, United States
-
Yale University
New Haven, Connecticut, 06520, United States
Conditions
Explore the condition pages connected to this study.