World's largest Takayasu's registry launches to unlock disease secrets
NCT ID NCT07558382
First seen May 01, 2026 · Last updated Jun 22, 2026 · Updated 10 times
Summary
This global registry is collecting information from 1,000 people with Takayasu's arteritis, a rare disease that inflames and narrows large arteries. Researchers will analyze patients' symptoms, lab results, imaging, and treatments to see how the disease behaves and is managed around the world. The study does not test any new drug or procedure—it simply observes and records what happens in routine care.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Marmara University School of Medicine
RECRUITINGIstanbul, Istanbul, 34899, Turkey (Türkiye)
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Marmara University School of Medicine
RECRUITINGIstanbul, Istanbul, 34899, Turkey (Türkiye)
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help doctors worldwide better understand and manage Takayasu's arteritis, leading to improved diagnosis and treatment guidelines.
What could go wrong
This is an observational study, not a treatment trial. It collects existing data and does not test any new therapy, so it cannot directly lead to a cure or new drug.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.