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The hidden burden: study shines light on scleroderma caregivers

NCT ID NCT04917146

Summary

This study aimed to better understand the experiences of family and friends who care for people with systemic sclerosis, a rare and serious autoimmune disease. Researchers surveyed 50 caregivers to learn about their quality of life, the challenges they face, and the support they provide. The goal was to gather information to create better support programs and resources for these caregivers in the future.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Rhumatology Service

    Paris, 75014, France

Conditions

Explore the condition pages connected to this study.