First-of-its-Kind survey asks: what do families living with a rare sleep disorder really need?
NCT ID NCT07498452
Summary
This study is a survey designed to understand the challenges and unmet needs of people diagnosed with isolated REM sleep behavior disorder (iRBD) and their family members or caregivers. Researchers will ask 150 participants to complete online questionnaires about their experiences, emotional well-being, and the information they need to manage the condition. The goal is to gather insights that can help improve support services and communication for affected families.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Azienda Ospedaliera Universitaria Integrata Verona
RECRUITINGVerona, Veneto, 37134, Italy
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Azienda Ospedaliero Universitaria Pisana
RECRUITINGPisa, Tuscany, 56124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Azienda Ospedaliero-Universitaria di Cagliari
RECRUITINGCagliari, Sardinia, 09124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione Istituto Neurologico Nazionale Casimiro Mondino IRCCS
RECRUITINGPavia, Lombardy, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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I.R.C.C.S. Associazione Oasi Maria SS. - Ospedale Classificato
RECRUITINGTroina, Sicily, 94018, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto delle Scienze Neurologiche di Bologna
RECRUITINGBologna, Emilia-Romagna, 40139, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale Policlinico San Martino
RECRUITINGGenoa, Liguria, 16132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale San Raffaele
RECRUITINGMilan, Lombardy, 20132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
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