Patients with rare sleep disorder speak out about hidden struggles and fears for the future
NCT ID NCT07498452
Summary
This study aims to understand the challenges and unmet needs of people diagnosed with isolated REM sleep behavior disorder (iRBD) and their family members or caregivers. Researchers are asking 150 participants to complete online surveys about their experiences, emotional well-being, and concerns about the future. The goal is to gather information to improve support services and patient education for this condition.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Azienda Ospedaliera Universitaria Integrata Verona
RECRUITINGVerona, Veneto, 37134, Italy
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Azienda Ospedaliero Universitaria Pisana
RECRUITINGPisa, Tuscany, 56124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Azienda Ospedaliero-Universitaria di Cagliari
RECRUITINGCagliari, Sardinia, 09124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione Istituto Neurologico Nazionale Casimiro Mondino IRCCS
RECRUITINGPavia, Lombardy, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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I.R.C.C.S. Associazione Oasi Maria SS. - Ospedale Classificato
RECRUITINGTroina, Sicily, 94018, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto delle Scienze Neurologiche di Bologna
RECRUITINGBologna, Emilia-Romagna, 40139, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale Policlinico San Martino
RECRUITINGGenoa, Liguria, 16132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale San Raffaele
RECRUITINGMilan, Lombardy, 20132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.