App aims to improve tracking of rare paralysis attacks
NCT ID NCT05976958
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study tested a smartphone app designed to help people with periodic paralysis record their muscle weakness episodes in real time. The goal was to see if the app could collect more accurate information about attacks compared to standard interviews during doctor visits. Only 2 people enrolled before the study was stopped early.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- Active substance
- smartphone application
- What this could lead to
- If successful, this app could help doctors better understand and manage periodic paralysis by providing more accurate attack data.
- What could go wrong
- The study was terminated early with only 2 participants, so results are very limited and may not apply to others.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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2 people
The number who actually took part.
- Started
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Jul 2019
- Finished
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Aug 2019
- Lead sponsor
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A government agency
The lead sponsor is a government body.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
All patients over 12 years of age with periodic paralyses, being followed at the Muscular Channelopathies Reference Center at the Pitié-Salpêtrière Hospital Group, who meet the inclusion criteria, are adequately informed, and have provided consent, may be enrolled in the study by their physician.
- Ages
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12 years and older
- Sex
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Anyone
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: All patients with periodic paralysis aged over 12 years and followed in the National Channelopathies Reference Centre will be eligible for the study if they: are able to understand, read and write French are willing to and capable of entering their clinical and medico-social and economic data in the Smartphone application have an identified parent/caregiver for children aged 12-18 years (not mandatory for adults) are affiliated to a Health Insurance are able to give their informed consent (adult patients) or if their legal representatives are able to give their informed consent (child patients) Exclusion Criteria: Will not be eligible, patients with a condition that could explain hypokalemia: renal, adrenal, thyroid dysfunction, renal tubular acidosis, abuse of diuretic and laxative, with a condition that could explain hyperkalemia: renal, adrenal, thyroid dysfunction, use of potassium-sparing diuretics, who are under guardianship
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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RaDiCo-PP
Paris, Île-de-France Region, 75012, France