Massive 5-Year study to track 1000 SMA Patients' Real-World journeys
NCT ID NCT07231549
Summary
This study aims to collect long-term health data from 1000 spinal muscular atrophy (SMA) patients across Spain over at least 5 years. Researchers will track patients' motor function, treatments, and health outcomes in real-world settings without changing their medical care. The goal is to better understand how SMA progresses and how different treatments work over time in everyday life.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hospital Sant Joan de Déu
RECRUITINGEsplugues de Llobregat, Spain
Conditions
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