Why aren't SMA patients getting treatment? new study investigates.
NCT ID NCT07223489
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 29 times
Summary
This study aims to understand the experiences of adults with spinal muscular atrophy (SMA) as they go through diagnosis and treatment. Researchers will survey 200 patients to find out why some are not receiving approved therapies. The goal is to identify barriers like cost or access and improve care for everyone.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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MedStar Health Research Institute
RECRUITINGWashinton, District of Columbia, 20010, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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