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Sleep struggles in kids with cerebral palsy: what families and doctors say

NCT ID NCT06753370

Knowledge-focused Sponsor: University of Edinburgh Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looked at how children with cerebral palsy, their parents, and healthcare professionals experience sleep disordered breathing and its management. Researchers interviewed 24 participants to understand the challenges and what helps or hinders treatment. The goal was to gather insights, not to test a new treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

24 people

The number who actually took part.

Started

Feb 2025

Finished

Jun 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Children and young people with cerebral palsy who are (or have been) managed with respiratory support for sleep disordered breathing, their parents/carer and health professionals involved in their care.

Ages

1 month to 16 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: \- Children and young people with CP and SDB; * Children and young people aged less than (but not including) 16 years old * Formal diagnosis of Cerebral Palsy * Formal diagnosis of Sleep Disordered Breathing (currently or previously managed with respiratory support) * Able to understand, communicate (with or without aids) and engage with interview (guided by parents/carer opinion on capacity to engage in interview) Parents/carers of CYP with CP; * Parents/carer of CYP with CP and SDB being (or has been) managed with respiratory support Health care professional; * Professionals (based in community or hospital setting) involved in the management of SDB in CYP with CP Exclusion Criteria: * Children and young people with CP and SDB and their parents/carers; * CYP with CP on respiratory support for failure to wean as neonate or for Chronic Lung Disease * CYP on respiratory support for other neuromuscular or neurodisability conditions * Health care professional; Nil

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Conditions

The condition(s) this trial relates to.

cerebral palsy sleep apnea syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cerebral palsy (CP) Respiratory support Sleep-disordered breathing (SDB)

Contacts and locations

Locations

  • Department of Paediatric Respiratory and Sleep Medicine, Royal Hospital for Children and Young People

    Edinburgh, Merseyside, EH16 4TJ, United Kingdom

  • NHS Lothian

    Edinburgh, Edinbrugh, EH16 4TJ, United Kingdom

More trials for these conditions

Other studies related to the condition(s) this trial covers.