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Hidden sleep struggles: UK study targets breathing issues in kids with cerebral palsy

NCT ID NCT06737302

Knowledge-focused Sponsor: University of Edinburgh Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Sep 18, 2026 · Updated 2 times

Summary

This study looks at how common sleep breathing problems are in children with cerebral palsy across the UK, and how often they use breathing support like CPAP machines. Researchers will track new cases over a year and explore what helps or hinders access to care. The goal is to improve early detection and treatment for these children.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could help doctors better identify and treat sleep breathing problems in children with cerebral palsy, potentially improving sleep quality and learning.
What could go wrong
This is an observational study with only 26 participants, so findings may not apply to all children with cerebral palsy. It does not test a new treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

26 people

The number who actually took part.

Started

Mar 2025

Finished

Aug 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

UK (England, Scotland, Wales and Northern Ireland)

Ages

1 month to 16 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Cases for Prevalence survey; * Any child aged ≤16 years old, with a confirmed diagnosis of cerebral palsy * On respiratory support on the date of prevalence survey Cases for Incidence self-reporting form; * Part A; * Any Child aged ≤16 years old, with confirmed diagnosis of cerebral palsy * Had sleep studies for suspected sleep disordered breathing within the preceding calendar month * Part B; * Any Child aged ≤16 years old, with a confirmed diagnosis of cerebral palsy * Initiated respiratory support (CPAP or NIV or invasive tracheostomy ventilation) in the preceding month Exclusion Criteria: (For prevalence survey and incidence self-reporting form) * Any patient aged \>16 years old * Patient does not have a confirmed diagnosis of cerebral palsy

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Conditions

The condition(s) this trial relates to.

cerebral palsy sleep apnea syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cerebral palsy (CP) Respiratory support Sleep-disordered breathing (SDB)

Contacts and locations

Locations

  • NHS Lothian

    Edinburgh, Edinbrugh, EH16 4TJ, United Kingdom

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