Rare disease mystery: new study aims to uncover SITRAME Syndrome's secrets
NCT ID NCT07168746
First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 32 times
Summary
This study will collect information from 100 people in France with SITRAME syndrome, a rare autoinflammatory disease. Researchers want to learn about the disease's symptoms, treatments, and outcomes. No new treatments are being tested; the goal is simply to gather data to better understand this condition.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could provide the first clear picture of how SITRAME syndrome affects patients, helping doctors recognize and manage it better.
What could go wrong
This is an observational study, not a treatment trial. It will not test any new therapy, and results may take years to gather and analyze.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.