No treatment, just observation: sickle cell study seeks 3,500 volunteers

NCT ID NCT00081523

Recruiting now Knowledge-focused Sponsor: National Heart, Lung, and Blood Institute (NHLBI) Source: ClinicalTrials.gov ↗

First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 33 times

Summary

This study does not test any new treatments. Instead, it follows people with sickle cell disease over time to learn more about the condition, its complications, and how it affects daily life. Researchers hope to better understand the disease to improve future care. Anyone age 2 or older with known or suspected sickle cell disease can join.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Childrens National Health Center
RECRUITING

Washington D.C., District of Columbia, 20010, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••
National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••
Suburban Hospital
COMPLETED

Bethesda, Maryland, 20814, United States

Conditions

Explore the condition pages connected to this study.

PAIN CRISIS