Massive study tracks retinoblastoma survivors to uncover Long-Term health secrets
NCT ID NCT03932786
First seen Sep 30, 2025 · Last updated Jun 23, 2026 · Updated 45 times
Summary
This study follows 900 retinoblastoma survivors and their families over time to learn about long-term health outcomes. Researchers collect vision tests, tissue and saliva samples, and questionnaires to understand what causes the cancer, how treatments affect health later in life, and which therapies work best. The goal is to improve future care for children with retinoblastoma.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for RETINOBLASTOMA are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact
Contact Email: •••••@•••••
-
Children's Hospital of Wisconsin
RECRUITINGMilwaukee, Wisconsin, 53226, United States
Contact
Contact Email: •••••@•••••
-
Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Email: •••••@•••••
Contact
-
Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
Contact
Contact Email: •••••@•••••
-
MD Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
Contact
Contact Email: •••••@•••••
-
Texas Childeren's Hospital
RECRUITINGHouston, Texas, 77030, United States
Contact
Contact Email: •••••@•••••
-
The Hosptial for Sick Children
RECRUITINGToronto, Canada
Contact
Contact Email: •••••@•••••
-
University of Illinois, Chicago
RECRUITINGChicago, Illinois, 60612, United States
Contact Email: •••••@•••••
Contact
-
University of Minnesoa
RECRUITINGMinneapolis, Minnesota, 55455, United States
Contact
Contact Email: •••••@•••••
-
Vanderbilt-Ingram Cancer Center
RECRUITINGNashville, Tennessee, 37232, United States
Contact Phone: •••-•••-••••
-
Washington School of Medicine at St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
Contact
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors better understand what causes retinoblastoma and identify the best treatments with fewer long-term side effects.
What could go wrong
This is an observational study, not a treatment trial. It will not directly test a new therapy, and results may take years to influence patient care.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.