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New study tracks retinoblastoma survivors to uncover Long-Term health secrets

NCT ID NCT03932786

First seen Sep 30, 2025 · Last updated Apr 30, 2026 · Updated 29 times

Summary

This study follows 900 children who had retinoblastoma (an eye cancer) and their family members over time. Researchers collect vision tests, saliva and tissue samples, and questionnaires to understand long-term health outcomes, genetic risks, and which treatments work best. The goal is to improve care and quality of life for survivors.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Children's Hospital of Philadelphia

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact

    Contact Email: •••••@•••••

  • Children's Hospital of Wisconsin

    RECRUITING

    Milwaukee, Wisconsin, 53226, United States

    Contact

    Contact Email: •••••@•••••

  • Cincinnati Children's Hospital Medical Center

    RECRUITING

    Cincinnati, Ohio, 45229, United States

    Contact Email: •••••@•••••

    Contact

  • Lurie Children's Hospital

    RECRUITING

    Chicago, Illinois, 60611, United States

    Contact

    Contact Email: •••••@•••••

  • MD Anderson Cancer Center

    RECRUITING

    Houston, Texas, 77030, United States

    Contact

    Contact Email: •••••@•••••

  • Texas Childeren's Hospital

    RECRUITING

    Houston, Texas, 77030, United States

    Contact

    Contact Email: •••••@•••••

  • The Hosptial for Sick Children

    RECRUITING

    Toronto, Canada

    Contact

    Contact Email: •••••@•••••

  • University of Illinois, Chicago

    RECRUITING

    Chicago, Illinois, 60612, United States

    Contact Email: •••••@•••••

    Contact

  • University of Minnesoa

    RECRUITING

    Minneapolis, Minnesota, 55455, United States

    Contact

    Contact Email: •••••@•••••

  • Vanderbilt-Ingram Cancer Center

    RECRUITING

    Nashville, Tennessee, 37232, United States

    Contact Phone: •••-•••-••••

  • Washington School of Medicine at St. Louis

    RECRUITING

    St Louis, Missouri, 63110, United States

    Contact Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.