New tools aim to measure stigma in kids with cancer
NCT ID NCT06470230
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This completed study involved 633 participants and aimed to develop two clinical tools to identify and measure stigma experienced by children with cancer and their caregivers. Researchers worked in the United States, Guatemala, and Jordan to ensure the tools are culturally relevant. The goal is to help healthcare teams better understand and address stigma in pediatric cancer care.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, these tools could help doctors and researchers better understand and address stigma in pediatric cancer care worldwide.
- What could go wrong
- This is an observational study focused on developing measurement tools, not testing a treatment. The tools may not work equally well in all cultures or settings.
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Study facts
What this study's own registry entry says, in plain language.
- Participants
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633 people
The number who actually took part.
- Started
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Jul 2024
- Finished
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Mar 2026
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Active cancer patients or survivors of cancer and adult parents or caregivers of active cancer patients or survivors of cancer.
- Ages
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8 years and older
- Sex
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Anyone
- Healthy volunteers
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Accepted
You do not need to have the condition being studied to take part.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Cognitive Debriefing and Pilot Data Collection - Patients/Survivors * Age 8 to 17.9 years of age * Active cancer patients or survivors of cancer * Cognitive Debriefing and Pilot Data Collection - Parent/Caregivers * Adult parents or caregivers (≥ 18 years of age) of active cancer patients or survivors of cancer. Exclusion Criteria: NA
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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King Hussein Cancer Center
Amman, Jordan
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States
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UNOP Unidad Nacional De Oncologia Pediatrica
Guatemala City, Guatemala
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Washington University School of Public Health
St Louis, Missouri, 63110, United States
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