Smartphone diaries reveal hidden toll of rare swelling disorder
NCT ID NCT07448181
First seen Mar 07, 2026 · Last updated May 23, 2026 · Updated 10 times
Summary
This study aims to understand the real-life burden of hereditary angioedema (HAE) by having 30 adults with Type 1 or Type 2 HAE answer daily smartphone surveys for 8 weeks. Researchers want to see if daily tracking shows a higher and more fluctuating burden than traditional questionnaires. The goal is to better capture how HAE truly affects emotions, daily activities, and quality of life.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Istituti Clinici Scientifici Maugeri, Milan, Milan 20138
RECRUITINGMilan, 20138, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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