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Experimental fetal fluid therapy aims to save babies born without kidneys

NCT ID NCT03101891

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jul 02, 2026 · Updated 3 times

Summary

This trial tests whether repeatedly adding sterile fluid into the womb can help fetuses with severe kidney failure grow enough lungs to survive after birth. Pregnant women with early pregnancy kidney failure can choose to receive the infusions or just be monitored. Babies who survive will need intensive care, dialysis, and eventually a kidney transplant. The study is no longer enrolling for one type of kidney problem but continues for others.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
serial amnioinfusions with isotonic fluid
What this could lead to
If it works, this could help babies with severe kidney failure survive birth by improving lung growth, though they will still need lifelong dialysis and a kidney transplant.
What could go wrong
This is an early phase 1 trial with only 70 participants and no random assignment. There is a high risk of early rupture of membranes and premature delivery. The treatment does not fix the kidneys.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Phase 1

The first testing in people. Mainly checks safety and dose, usually in a small group.

Participants

55 people

The number who actually took part.

Started

Dec 2018

Finished

Feb 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Female participants only

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. Confirmed anhydramnios before 22 weeks gestational age (GA) for patients with fetal renal failure (excluding bilateral renal agenesis) 2. Consent is signed and first therapeutic amnioinfusion can and does occur before 26 weeks and 0 days GA 3. Confirmation that the expectant mother does not wish to undergo termination of the pregnancy 4. Age ≥ 18 years of age for expectant mothers 5. Willingness to be followed and deliver at a RAFT center 6. Willingness for postnatal care to be performed at a RAFT center until discharge 7. Completed consults with Pediatric Nephrology, Neonatology, Transplant Surgery, Pediatric surgery, Maternal-Fetal Medicine Specialist, and Licensed Clinical Social Worker and a Genetic Counselor Exclusion Criteria: 1. Cervix less than 2.5 cm in length 2. No significant pathogenic or likely significant pathogenic findings on Karyotype or Microarray 3. Other significant congenital anomalies in the fetus 4. Evidence of chorioamnionitis or abruptio placentae 5. Evidence of rupture of membranes or chorioamniotic separation 6. Evidence of preterm labor 7. Multiple gestation 8. Severe maternal medical condition in pregnancy. 9. Maternal depression as assessed by a Beck Depression Inventory score equal to or greater than 17 that is refractory to treatment 10. Technical limitations precluding amnioinfusion

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • Columbia University

    New York, New York, 10032, United States

  • Johns Hopkins Hospital

    Baltimore, Maryland, 21287, United States

  • Mayo Clinic

    Rochester, Minnesota, 55902, United States

  • Stanford University

    Stanford, California, 94305, United States

  • University of California San Francisco

    San Francisco, California, 94158, United States

  • University of Colorado Denver

    Aurora, Colorado, 80045, United States

  • University of Southern California/Children's Hospital of Los Angeles/Huntington Hospital

    Los Angeles, California, 90033, United States

  • University of Texas Health Science Center at Houston

    Houston, Texas, 77030, United States

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