Living with ichthyosis: patients share their stories in new study
NCT ID NCT05610306
First seen Nov 01, 2025 · Last updated May 01, 2026 · Updated 23 times
Summary
This study interviewed 20 adults aged 30 and older with congenital ichthyosis to understand how the condition impacts their daily life, including pain, social activities, work, and finances. The goal was to learn about their experiences, not to test a treatment. Participants shared their challenges in one-on-one conversations.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Maastricht University Medical Centre +
Maastricht, 6229HX, Netherlands
Conditions
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