Living with ichthyosis: what 20 patients reveal about daily struggles
NCT ID NCT05610306
First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 31 times
Summary
This study interviewed 20 adults aged 30 and older with congenital ichthyosis, a rare genetic skin condition. Researchers asked about pain, social life, work, and finances to learn how the disease affects overall well-being. The goal was to gather insights, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Maastricht University Medical Centre +
Maastricht, 6229HX, Netherlands
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.