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Study seeks to uncover hidden cases of rare liver disorder

NCT ID NCT04923516

First seen Jan 31, 2026 · Last updated May 21, 2026 · Updated 9 times

Summary

This study looked at 150 adults aged 18 to 60 who had severe abdominal pain along with other nerve-related symptoms, but no clear cause. Researchers tested their urine to see if they had acute hepatic porphyria (AHP), a rare metabolic condition. The goal was to find out how many of these patients actually have AHP, which could help doctors diagnose it sooner.

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Contacts and locations

Locations

  • Hôpital de la Pitié Salpêtrière

    Paris, France

Conditions

Explore the condition pages connected to this study.