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Rare cancer patients get a voice in drug funding decisions

NCT ID NCT04814095

First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 26 times

Summary

This study tracks 30 adults with rare cancers or rare genetic changes who are already taking a Health Canada-approved targeted therapy that isn't yet covered nationally. Researchers will measure how long patients live, their quality of life, and how well the treatment works. The goal is to gather real-world evidence to help decide if these therapies should be funded for wider use.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • BC Cancer

    RECRUITING

    Vancouver, British Columbia, V5Z4E6, Canada

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.