500 patients to help unlock secrets of rare liver disease
NCT ID NCT04645251
First seen Jan 06, 2026 · Last updated May 23, 2026 · Updated 19 times
Summary
This study is a registry that will follow up to 500 people with polycystic liver disease (PLD) in the UK. Researchers will collect information from medical records and questionnaires to understand how the disease changes over time, what symptoms people have, and how it affects their quality of life. No new treatments are being tested — the goal is simply to learn more about the disease.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Portmouth Hospitals University NHS Trust
RECRUITINGPortsmouth, Hampshire, PO63LY, United Kingdom
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Radboud University Medical Center
RECRUITINGNijmegen, 6525, Netherlands
Contact Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.