New UK registry aims to unlock secrets of polycystic liver disease
NCT ID NCT04645251
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This observational registry is recruiting 500 people with polycystic liver disease (PLD) across the UK. Researchers will collect data from medical records and questionnaires to map how the disease progresses, including symptoms, liver cyst changes, and quality of life. The goal is to better understand PLD and identify factors that lead to complications or the need for treatment.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry will provide a clearer picture of how polycystic liver disease progresses, which could guide future treatments and improve patient care.
- What could go wrong
- This is an observational study, not a treatment trial. It collects data only and will not directly improve participants' health. Results depend on accurate reporting and may take years to yield meaningful insights.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Portmouth Hospitals University NHS Trust
RECRUITINGPortsmouth, Hampshire, PO63LY, United Kingdom
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Radboud University Medical Center
RECRUITINGNijmegen, 6525, Netherlands
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