New UK registry aims to unlock secrets of polycystic liver disease
NCT ID NCT04645251
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This observational registry is recruiting 500 people with polycystic liver disease (PLD) across the UK. Researchers will collect data from medical records and questionnaires to map how the disease progresses, including symptoms, liver cyst changes, and quality of life. The goal is to better understand PLD and identify factors that lead to complications or the need for treatment.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry will provide a clearer picture of how polycystic liver disease progresses, which could guide future treatments and improve patient care.
What could go wrong
This is an observational study, not a treatment trial. It collects data only and will not directly improve participants' health. Results depend on accurate reporting and may take years to yield meaningful insights.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Portmouth Hospitals University NHS Trust
RECRUITINGPortsmouth, Hampshire, PO63LY, United Kingdom
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Radboud University Medical Center
RECRUITINGNijmegen, 6525, Netherlands
Contact Email: •••••@•••••
Contact Email: •••••@•••••