UK launches major registry to track polycystic liver disease

NCT ID NCT04645251

Recruiting now Knowledge-focused Sponsor: Portsmouth Hospitals NHS Trust Source: ClinicalTrials.gov ↗

First seen Jan 06, 2026 · Last updated May 14, 2026 · Updated 18 times

Summary

This study is a registry that collects information from 500 people with polycystic liver disease (PLD) in the UK. Researchers will track symptoms, liver cyst changes, and quality of life over time using questionnaires and medical records. No new treatments are tested—the goal is to better understand how the disease progresses.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Portmouth Hospitals University NHS Trust
RECRUITING

Portsmouth, Hampshire, PO63LY, United Kingdom

Contact Email: •••••@•••••

Contact Email: •••••@•••••
Radboud University Medical Center
RECRUITING

Nijmegen, 6525, Netherlands

Contact Email: •••••@•••••

Contact Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.

POLYCYSTIC LIVER DISEASE POLYCYSTIC LIVER DISEASE