MPS patients help shape new exercise program
NCT ID NCT07449143
First seen Mar 16, 2026 · Last updated May 23, 2026 · Updated 6 times
Summary
This study aims to create a physical activity and sedentary behavior program tailored for adults with mucopolysaccharidosis (MPS). Researchers will gather ideas and experiences from 50 participants, including adults with MPS, their families, and healthcare specialists, through focus groups and interviews. The goal is to design an intervention that improves mental health and quality of life, but the study itself does not test any treatment or cure.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Brunel University London
London, UB8 3PH, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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