MPS patients help design new exercise program

NCT ID NCT07449143

First seen Mar 16, 2026 · Last updated May 11, 2026 · Updated 4 times

Summary

This study aims to create a physical activity and sedentary behavior program tailored for adults with mucopolysaccharidosis (MPS). Researchers will gather input from patients, their families, and healthcare specialists through focus groups and interviews. The goal is to design an intervention that improves mental health and quality of life, but this study focuses on developing the program, not testing it yet.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Brunel University London

    London, UB8 3PH, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.