Patients help design First-Ever exercise plan for rare disease
Knowledge-focused
Not yet recruiting
This study aims to design a physical activity and sitting-time reduction program specifically for adults with mucopolysaccharidosis (MPS), a rare genetic disorder. Researchers will work directly with 50 UK-based adults who have MPS, their families, and their doctors to understand…
Sponsor: Brunel University • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:39 UTC